Tuesday, August 13, 2013


Today we had our visit with the endocrinologist. Last week when we were referred the doctor told me to be prepared to be put on a waiting list that could take up to 3 months. I figured as much but knew I wouldn't settle for that and was prepared to call everyday twice a day to get in on a cancellation like I've done before;) well I guess God knew I needed a break and miraculously when they called to schedule our appointment, the lady said "oh we have one open on Tuesday". I didn't even let her finish,I said I would take it! I didn't care when or where! So by the grace of God we were able to get in. The bonus is that his endoscopy and colonoscopy procedures are next week and he will be under anesthesia. Since I knew they would need to draw labs it worked out perfectly, they could get the labs while he is under. Prayers being answered?? Yes!

Ok on to the appointment. We were referred because the doctors were concerned that his height is not progressing as it should. I prayed that the doctor would be the right one for us and she was. She was young and very bright. She was super sweet and great with tucker, who has ALOT of anxiety when it comes to doctors and nurses. In fact he didn't cry very much at all with her. She sat and talked with us for about 45 minutes and wanted me to tell her all about his history so she could understand him better. Afterwards she examined him and took some measurements. She explained to us that they would be getting some labs to look at two different Things. The thyroid and his growth hormone. Back in march when we were hospitalized, they checked his thyroid and it was normal so she really doesn't think it will be abnormal, but still wants to check. The other is checking his growth hormone. If abnormal more testing will be needed, but basically he would have to have nightly injections for most of his life. If neither are abnormal, then they will send us on to genetics for other kinds of testing. We are already scheduled to see genetics next month, so that worked out. She also said she would like to give him a little more time to see what happens. Maybe he will show a little more improvement?? His weight is progressing very well. She was looking at his charts and was astonished at how much testing and labs had already been done and mentioned that this was puzzling since most seemed to be normal with only a very few abnormalities. I told her to tell us something we didn't know;) all in all it was a good visit. I'm not sure how I feel about everything at this point since it's now a waiting game, but I have to keep reminding myself who is in charge and I have to keep the faith and keep praying:)

Next week is a big week for us. The endoscopy and colonoscopy procedures are scheduled for Wednesday, with Tuesday being a day for prep, which in all honesty I think will be worse than the actual procedures:/ he has physical therapy on Thursday and then Friday we get his iron checked and will likely have to have an iron infusion done that day as well. I have been feeling so down and tired and frustrated with it all lately, but I think it's mostly in anticipation for next week! But we are fighters and we are strong in our faith! We will get through this like we always do:) please pray for tucker and please say a little prayer for his mama too:)

We are still waiting on results of the past labs from immunology to determine out next move. I will update as soon as I know. Thanks again to all of you for your thoughts and prayers we appreciate them and need them:)

Hope all are having a great week! Thanks for stopping by:)

Typical day at our house:)

Loves the iPad!

Swimming lessons:)

"Trust in The Lord with all your heart, do not depend on your own understanding. Seek his will in all you do, and he will direct your paths." Proverbs 3:5-6

Love and blessings,

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1 comment:

  1. So I was following you for the longest time and then something happened and I just noticed I hadn't heart from you in so long I went looking for you and what do you know? You'd disappeared! I'm off to catch up! :)


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