I also ended up having to drive to the medical center on Tuesday as well. After Tucker's surgery they put on a special type of bandage and only instructed us to clean around it. We are due to go back to our surgeon in two weeks (4 weeks from the surgery day) to get his "g-button" put on, until then we weren't supposed to go in unless something came up. Well, I also noticed that his wound has been leaking a lot. A lite leakage is normal. Carl and i also noticed that his bandage was really nasty and were wondering why they wouldn't change it. So I called the surgical nurse to check and see. She asked me if we had been changing the bandage once a week (it has been two weeks) and I told her no because no one told us to and didn't give us any supplies. She apologized and told us they were supposed to do just that. I was furious. So again she apologized but told me we would have to drive into the main campus to have her help me and get supplies. So after I finished at the pediatrician, I headed home dropped Tripp off with aunt janelle and headed into the med center. My mom came with me since Carl was in a meeting. Thank God she did because it took all of us to hold my poor baby down while she changed the bandage and scrubbed around the site. She also gave us supplies which would have been helpful two weeks ago, but oh well. Anyways, Tuesday ended up being a crazy day.
After speaking with the people from the specialists offices we still have no more direction. Mainly because the drs have nurses and fellows call who have no idea what's going on and can't help much. It is super frustrating. I have decided to wait the couple weeks until I go into our next appointments to actually speak with the doctors themselves. Tucker's story is so complicated, it's hard to get new people up to speed. So more waiting. In the mean time I am doing what I can to help and our pediatrician is so awesome too! Please pray we get more direction and answers soon!
Ok, enough rambling for now. I will update with more info soon. I feel a little better today because my awesome mom spent the night last night and got up with tucker so I could sleep a full night! Thanks mom, I feel like a new woman;) Carl went on a fishing trip for the night and will be back tonight, thank goodness!
Thank you for stopping by and for your thoughts and prayers, we love you all!!!
Feeling better, thank God!
Love and blessings,
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