Tucker update

First of all we wanted to thank everyone for their kind words, thoughts and prayers. It's so appreciated and God is hearing all of our prayers. I have been praying that God would place the right doctor in our path and he has. I start crying when he walks in the room because he has been so helpful and attentive to us. I even made him tear up today when I told him how thankful I was that God placed him in our path. Our nurse for the past few days has been amazing as well. She has been an advocate for us, hugged me, cried with me,etc. all of the staff here are amazing though. We really couldn't be in a better place.


So basically, after many tests ( and more to come), tucker is extremely malnourished and needs nutrition ASAP. We still have to get therapy for his swallowing aversion, but his sudden lack of energy and significant weight loss are going to hopefully improve with nutrition. So they are going to put in a feeding tube through his nose in order to ensure this. He will probably have to keep it in once we leave for a while but our hope is that it will perk him up and jump start him into eating again then we can remove the tube. So that means we will be here for at least a few more days.

As for the cause to why the sudden lethargy and weight loss, the drs are not sure. They are all working together now to figure that out. We have talked to gastro specialists, genetics and our team of doctors. I am at peace knowing that they will figure it out. We are also having a brain MRI tomorrow morning to rule that out. The doctors don't seem to think there will be anything but I'm glad they are doing it so I can rest assure.

We don't have all the answers yet but I feel like we are finally getting on the right path. I also know we are in the right place. We have a long road of occupational therapy, GI Appointments and adventures with a feeding tube but we can handle it. God never gives you more than you can handle:) if we find out anything more after tomorrow's tests I will update my blog. Thanks again for all your prayers! Here are a few pics of the patient:)




















Love and blessings,
Traci


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