We also saw our genetics specialist this past week. He was surprised by the results of the test. We spent about an hour talking to him about everything. He is very in depth and had a lot of information. In a nut shell, our only option there is to request an expanded version of the test. They may be able to look further into it and see if there is anything else that may help explain his sickness. It's a far stretch. We are waiting to see our immunologist in July who is kind of the head of our case. It sounds like she wants to do research. She has me trying to obtain his DNA sample from the lab so they can have it in their possession. So once we speak with her we will find out what the next step is. I am honestly not as worried about him as before. It is frustrating not having an answer, with the fear of him slipping back into that bad place again. But I feel like God has given me peace in my heart. I am not worried like I was before. I do get stressed after speaking with the doctors because they want an answer. All of doctors have been wonderful. We have been blessed. Overall, I am just so happy to see my healthy and happy little boy running around with his brother. And as crazy as he drives me, I'm happy that he is a normal little boy going through his terrible twos!
Again we thank everyone who has been praying for our baby. We serve a loving and faithful God. We are thankful for our baby. We do not know what the future holds, but we do know who holds our future. I will continue to update my blog with any new information.
Hope all have a blessed weekend!
Here are a few pictures of the boys and the summer fun we have been having!
Thanks for stopping by!
Love and blessings,